Neurology

Have you or someone you know been affected by nocturnal hypoventilation in Myotonic Dystrophy? Your input is needed on a protocol considering non-invasive mechanical ventilation for people with this condition.

Skills / interests: Consumer (public, patient, carer) input

Would you be interested in helping us with this article focused on non-invasive mechanical ventilation for people with nocturnal hypoventilation in Myotonic Dystrophy?

I am looking for a consumer who would be willing to provide feedback for a Cochrane protocol, “Non-invasive Mechanical Ventilation for Nocturnal Hypoventilation in Myotonic Dystrophy”. Cochrane considers a consumer to be a person with experience of the condition (in this case, nocturnal hypoventilation in Myotonic Dystrophy), either as a patient or as a carer/family member of a patient.

A protocol is a plan for a systematic review. Consumer input at the protocol stage is integral to ensure that the completed systematic review will be helpful to patients and carers with healthcare decision-making. For consumer peer review, you will be asked to complete a short form with your feedback. Our aim is for this to be a manageable task that does not overburden consumer reviewers.

Thank you in advance for considering!

Ideal applicant

A person with experience of the condition (in this case, nocturnal hypoventilation in Myotonic Dystrophy), either as a patient or as a carer/family member of a patient.

Think you've got what it takes to get the job done for Cynthia?

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