Have you or someone you know been affected by nocturnal hypoventilation in Myotonic Dystrophy? Your input is needed on a protocol considering non-invasive mechanical ventilation for people with this condition.
Skills / interests: Consumer (public, patient, carer) input
Would you be interested in helping us with this article focused on non-invasive mechanical ventilation for people with nocturnal hypoventilation in Myotonic Dystrophy?
I am looking for a consumer who would be willing to provide feedback for a Cochrane protocol, “Non-invasive Mechanical Ventilation for Nocturnal Hypoventilation in Myotonic Dystrophy”. Cochrane considers a consumer to be a person with experience of the condition (in this case, nocturnal hypoventilation in Myotonic Dystrophy), either as a patient or as a carer/family member of a patient.
A protocol is a plan for a systematic review. Consumer input at the protocol stage is integral to ensure that the completed systematic review will be helpful to patients and carers with healthcare decision-making. For consumer peer review, you will be asked to complete a short form with your feedback. Our aim is for this to be a manageable task that does not overburden consumer reviewers.
Thank you in advance for considering!